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Vínculo con instituciones
El día 29 de marzo de 2021 se sostuvo reunión con Lic. Mónica Mieres Hermosillo Titular de la Unidad Coordinadora de Vinculación y Participación Social , Lic. Colomba Nettel Cruz Directora de Análisis de Organizaciones Ciudadanas, Dra. Patricia Hernández y Mariana Terán.
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Fundación Mexicana de Atrofia Girata A.C., will be hosting the first event for patients with degenerative and hereditary diseases of the retina. People with this condition, due to a birth problem, are gradually losing their vision.
Date: 4 to 6 of november, 2021.
We invite you to the event "Ver más allá de lo posible":
Help us fight for the eyesight of Imanol and Julio
These brothers were born with gyrate atrophy and nned a medicine called Cyclinex 2. With your help, their vision of the future could be more promising, help us to improve their conditions.
Happy new year!
Thank you for your support!
This 2021 we were able to Raise funds for research done by the University of Pennsylvania on a possible cure for gyrate atrophy at the university, create bonds between families, host events and help a lot of people.
Ver más allá de lo posible: Evento Completo.
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